Hi, my name is Tony! I have a rare neuro-muscular disease called Friedreich's Ataxia which is detailed throughout my blogs. My goal is to explore as much of the impact it has on my life as possible. Even if at times it is difficult to talk about. I've never wanted nor claimed to be an inspiration, but this website provides me the opportunity to show who I am where I've been unable to in the past. Maybe I can reach someone who needs to hear from someone like me. Maybe I can inspire.

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Writing is the best way for me to communicate anything about me, so in addition to demonstrating that, I hope to learn about myself as well. Further, I strive to share personal stories about myself, some I've been hesitant to share before. I may embarass myself, though it wouldn't be the first time and it certainly won't be the last. You can learn even more about me on the About section!